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The
Bad Boy/Bad Girl of Pain
Stigma #3: Failure to Respond to Therapy
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At first this might sound more like a stigma for the medical
profession than for a patient, but it may not work that way. You are particularly at risk
of offending doctors who do not realize that Central Pain does not respond to opioids
(such as Demerol or morphine), except possibly at levels of those medications which amount to
sedation, and there are probably better drugs for sedation than opioids. When the
national press reported the death of Bette Lou Hamilton after consulting Dr.
Kevorkian,
the news articles included a statement by a doctor who stated that he did not believe
constant pain was part of her condition. Passing on whether pain needs to be constant to
have an effect, if quoted correctly, it shows what Central Pain patients are up
against. Ms. Hamilton had Central Pain from syringomyelia, had undergone ten
surgeries to
try to get rid of her pain, and apparently took her own life because she felt she had run
out of resources by which to endure her Central Pain. Even this desperate act failed to inform
others of her plight. If people who commit suicide over Central Pain don't
convince
doctors that Central Pain is what it is, what will? Data from PET scans which show
brain shutdown in Central Pain have probably done more to persuade the profession that
something terrible is going on than the desperation of patients, so it is hoped that the
era of doubting may soon be gone. In fairness to the doctor, the quote was given out
of any context. He was almost surely not quoted correctly, since from what was
reported, he had not met Ms. Hamilton. Still, even this author has heard physicians speak
of past patients with Central Pain who committed suicide, only to write it off to their
patients "weakness" rather than realize they have been in the midst of
unspeakable pain and were unable to comprehend it. "None are so blind as those who
will not see".
You can do something about this particular lack of information among the medical
profession, if you will take the time to really think about your pain symptoms and send
your best attempt at a verbal description to PainOnline. If we can expose physicians to
these descriptions, placed in categories which make sense, we can prevent the skepticism
and downright abuse that patients endure from doctors who fail to recognize that the
bizarreness of the pain confirms the diagnosis or serious illness, rather than casting
doubt on it.
Stigma #1:
Not Fitting Into Common Perceptions
Of Pain
Stigma #2: Social Unacceptability
Stigma #3:
Failure to Respond to Therapy
Stigma #4: Shame From Being Tortured
Stigma #5: Need
for Pleasure
Stigma #6:
Negative Emotions
Stigma #7: Religiously
Unacceptable Thoughts
Disclaimer:
All material on PainOnline is strictly the opinion of the
authors of the material on this Web site. PainOnline does not attempt to
offer medical advice. If you have concerns about your health, please see a
qualified health care provider.Copyright © 2001 by David Berg
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